Terms

Advance Care Plan
Advance care planning is a thoughtful process to plan for future healthcare choices, involving personal reflection and discussions about medical treatment preferences.

Advanced Dementia
The patient is generally awake and able to respond but is confused as far as time, place, and names with impaired memory, vocabulary, and ability to reason because of deterioration of brain function not due to medication or a transient or reversible condition.

Advance Directive / Living Will
A legal document by which the patient states his or her preference to forgo life-sustaining treatment during terminal illness or a terminal state of unconsciousness.

Allow Natural Death
Refers to decisions that can be made NOT to have any treatment or procedure that will only delay the moment of death and applies only where death is about to happen from natural causes

Antibiotics
Medications used to fight infections. Used to treat illnesses or relieve symptoms.

Autonomy
The principle of autonomy gives to the adult competent individual the right of self-determination and to have full control over decisions related to invasion of the body.

Beneficence
The physician should be the patient's advocate under all circumstances. The patient's well-being should be placed above the physician's self-interest.

Breathing Machine / Ventilator / Respirator
Mechanical ventilation is used to support or replace the function of the lungs. A breathing machine is attached to a tube inserted through the nose or mouth and into the windpipe and forces air into the lungs. Mechanical ventilation is often used to assist a person through a short-term problem or for prolonged periods in which irreversible re­spiratory failure exists.

Capacity
The ability to take in information, understand its meaning and make an informed decision using the information.

Cardiopulmonary Resuscitation (CPR)
Attempts to restart breathing and the heartbeat of a person who has no heartbeat or has stopped breathing. CPR involves "mouth-to-mouth" breathing and forceful compressions on the chest to restart the heart. Usually involves electric shot (defibrillation) and a plastic tube down the throat into the windpipe to assist breathing (intubation).

Coma
Total unawareness of self and environment with no periods of awakening; could be deep with total lack of response or less deep when some reflex response could be evoked with stimulation.

Comfort measures / comfort care
Medical care provided with the primary goal of keeping a person comfortable rather than prolonging life. Comfort measures are used to relieve pain and other symptoms.

Competence To Make Medical Treatment Decisions
Not necessarily equivalent to legal competence. It stipulates that the patient is able to understand, evaluate, and choose a treatment.

DNR
Do-not-resuscitate order: indicates that for medical reasons or a terminal condition CPR is inappropriate in the event of cessation of the heartbeat or breathing.

Feeding Tube
A small plastic tube, inserted through the nose, or directly into the stomach or intestines to feed someone who can no longer swallow food.

Healthcare Surrogate / Proxy
A proxy decision maker to make healthcare decisions when the patient is no longer competent to make them.

Informed Consent
The patient agrees to a certain medical intervention based on his or her evaluation of all relevant information about the procedure, alternatives, and the competence of the treating team.

Intravenous (IV) fluids
A small plastic tube (catheter) is inserted directly into the vein and fluids are given through the tube.

Life-sustaining Treatments
Refers to medical or surgical treatments such as tube feeding, breathing machines, dialysis, some medications and CPR that use artificial means to restore life and without which the patient will die.

Nonmaleficence
"First do no harm" is the first law in the practice of medicine.

Patient Self-Determination Act
(Part of Budget Reconciliation Act of 1990, PL 101-508, sections 4206, 4751)
A federal law, implemented in December 1991, that requires institutions to notify patients about the availability of formal advance directives.

Permanent Vegetative State
Irreversible vegetative state due to severe injury or acute oxygen deprivation to progressive degenerative metabolic or developmental brain disorder.

Persistent Vegetative State
A vegetative state that has persisted for a period of time (three months when caused by disease and twelve months after head injury).

POLST
Physician Orders for Life Sustaining Treatment was started in Or­egon in the early 1990's to improve the quality of medical care provided by turn­ing people's wishes regarding life sustaining treatments into medical orders.

Shared Decision-Making
An adult, competent individual has the ultimate right to accept or refuse medical treatment even if that decision is deemed irrational or harmful.

Tube-feeding
Providing fluids and/or nutrition by way of a tube placed into the stomach or intestines. On a short-term basis, the tube (nasogastric tube or "NG-tube") is placed into the nose, down the throat and into the stomach. For the long-term, the tube is placed directly into the stomach (gastric, or "G-tube").

Vegetative State
Unawareness of self and environment with sleep-wake cycles and with either complete or partial preservation of brain-stem autonomic functions.

Helping families create, communicate, and honor future medical care wishes.